Never think of your time with a fatal disease as waiting to die. Look at your time with inquisitive eyes and ask, "What can I do with the time I have?"
People with ALS pass through a doorway into a different world. It's a one way trip: you may survive, but you can never come home to the same old life.
And however much they want to be with you, Moms, Dads, Sisters, Brothers, Spouses, Friends & Lovers can't come into your world on an equal footing. But when people with ALS meet, it's different.
They don't have to explain how it feels
They don't have to explain anything