A TID BIT

I HEARD FROM BOTH MIKE'S (TORONTO AND THE UK).


AND THEY ARE BOTH WELL. ALIVE AND FIGHTING. AS I AM TOO BUT IT'S A TRYING TIME FOR ME. I EXPECT TO BE HEALED AND WELL EVERY TIME I WAKE UP. THEN A HEAVY DOSE OF REALITY HITS ME WHEN I TAKE MY FIRST STEP. my ego says everything will okay. MY EGO IS WRITING CHECKS THAT MY BODY IS HAVING A HARD TIME CASHING. HAVEN'T BOUNCED ONE. BUT I KNOW I HAVE A HEAVY LOAD TO CARRY IN THE FUTURE. I'M NOT COMPLAINING, I'M JUST SCARED-I GUESS. AND I'VE NEVER BEEN SCARED OF ANYTHING-EXCEPT BEES! I MEAN IT. but the thought of not being to move haunts me every second. IT'S NOT DYING THAT SCARES ME, IT'S NOT BEING ABLE TO MOVE. THE THOUGHT OF HAVING TO RELY ON SOMEONE FOR EVERYTHING.
I FEEL, AS OTHERS HAVE W/ ALS, THAT EACH TIME I LET SOMEONE HELP ME OR BUY A CANE TO HELP THEM WALK (I'M ALMOST THERE W/ REGARDS TO A CANE). WE ARE LOSING SOMETHING-INDEPENDENCE.

AND THAT MY FRIENDS, IS THE SCARIEST PART OF THE PROGRESSION OF ALS-LOSING YOUR INDEPENDENCE.

I WROTE THIS TIDBIT TODAY BECAUSE A FRIEND EMAILED ME. HE JUST LOST HIS ABILITY TO WALK ON HIS OWN. THE EMAIL CONVEYED TO ME, THAT IT'S A MATTER OF TIME FOR ME, BEFORE I'M THE ONE TELLING YOU THAT I NOW NEED ASSISTANCE. IT WAS SO HARD FOR HIM TO GIVE IN-SO HARD. BUT YOU KNOW ME-I'M NOT GIVING TILL I'M CRAWLING!!!!!!!!!(I GOT THAT SAYING FROM HIM)

THAT IS MY EGO, MY HOPE TALKING. AND I WILL TALK ON............

MY OCCUPATIONAL THERAPY WENT WELL YESTERDAY AT GAYLORD-MY THERAPIST-TONY-SHE IS AWESOME. SO INNOVATIVE W/ HER METHODS.

I'M OFF-TO GET FITTED FOR A NEW PALATE LIFT.

HAVE A GREAT DAY AND SMILE,
D