December 3, 2007
I woke up to my legs feeling like never before. I am walking w/ out hinge in my step for the first time in 5 months. I was flying through my physical therapy this morning. Feels great, I just hope there is some longevity to it.
Chris from Tennessee arrived the other day with his family. He is an SCI (spinal cord injury). He is a positive kid. He has the coolest electric wheelchair-it goes up the stairs by itself.
Michael from the UK came in last night w/ his mom and dad. He is the youngest person on record in Europe and they think the world to have-you guessed it-ALS. He is 20 years old and an ATHLETE. Yeah that’s right-20! He told me that he thinks the symptoms started as far back as 17. He was diagnosed October 2006. It started in his legs and spread to his hands and shoulders. He gets around w/ help. GREAT family. It seems as though I'm seeing a pattern emerging. Like for instance, Boris and I, we lost OUR ability to articulate but we get around fine. With Mike (Toronto) and Michael (UK)-they have there ability to articulate but they need help getting around. I guess you pick your poison or the man upstairs does IT FOR YOU. Either way it leads to the same mysterious highway. I can’t shake that he’s 20. I have lived a great life-if it’s my time-I have but one regret (KMR) otherwise I’m okay with dying-as harsh as that sounds-I swear, I’m okay w/it. And don’t think for one second I’m throwing in the towel-BECAUSE I'M NOT! I am not afraid to die-is all. According to my doctors and the definition of ALS-I’m dying right now as I write this. My point with this is -- I have nothing to lose here. I have to fight along w/ everyone else and see the outcome through. Whatever that is and accept it.
But he’s just a kid. That’s NOT fair. I told him youth is on our side and to ride that wave. Exercise (PT, OT and acupuncture) and eating right are the keys to keeping this two-headed monster at bay. And the human mind does not get enough credit-- for it can undo anything if you believe. I really believe that. Like I always say to my mom, “if it doesn’t mind it does not matter”.
LOTS OF PICS COMING
The best way to prepare for life is to begin to live